Living With Haemophilia - The Beginning (Parents Point Of View)

So for me unfortunately there was no warning that this may happen it was just all of a sudden a thing and we just had to deal with it. I can remember getting told about this word when he was 2 days old and at first I don't think I believed it or even listened to what was happening as it was all such a blur.

Maybe on day 4 we were took into a room and this is when it was confirmed this was going to be with us for the rest of our life. We were just bombarded with information about what it is, what is going to happen and my head was just so full with all this doctor-fied information that just didn't make sense.

When all this information started to sink in I just remember thinking it was the worst thing in the world and that I wouldn't have that perfect little boy I thought I was going to be having and that we wouldn't be able to do anything encase he was to fall over or cut himself as this would mean he would bleed to death.

Then he started to grow up and accidents happened. Ill always remember the first one. It was when he got his first injections as a baby and my mam was going to babysit and I just knew something wasn't right. He just wouldn't stop crying. This was probably the scariest thing ever but luckily I would say this is when it got better. Not dramatically better but better. The first time for anything is always the scariest but I feel once this is over you are sort of prepared and even experienced for the next time.

As the months went by we slowly started to find bumps and bruises and started to understand the condition more and that not all bumps and bruises are going to be a problem or that just because he has a bleeding disorder doesn't mean he bleeds any different to you and I he just doesn't clot as easy so needs a little help.

What I have learnt from the first few years of dealing with this is just take each day as it comes as each day is going to teach you a little more. You also aren't expected to know everything at the start but luckily things wont all happen at the same time either.

Thank you once again for reading. I hope one day maybe I can be there for someone else as I no I would of loved someone in my position as sometimes its frustrating because it feels no one understands.

Lots of Love
    The Haemo Mom
        xxx